After a year and a half of stomach issues and several visits to the pediatrician, my daughter, now 13, made it clear that these stomach issues were affecting her life. She was waking up at 4 in the morning with stomach pain, missing school days and extremely tired every day. Rashes would appear for no reason. Migraines and headaches were becoming more frequent.
Since we had tried everything our pediatrician had recommended and none of it worked, we first tried going lactose free. That helped for a few days but then stopped.
I decided to get a referral to a specialist and was sent to the pediatric Minnesota GI clinic. We had to wait four weeks to get in.
They asked about my daughter Marcy's symptoms then drew some blood. They sent us home with a lactose intolerance test.
The tests came back saying the celiac panel was high.
The next step was an upper endoscopy. This would require going to the hospital, IVs and the works. Couldn't we just go gluten-free? No. Too big of a life change, they said. You want to be sure.
So to be sure, we went to the hospital and two days later found out that she does, indeed, have celiac disease. That was our first surprise.
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